Levi Zachary - Hebrew "Attached - Remembered by God"
Our 6th grandson, 7th grandchild, was born to Hannah Elizabeth (Martin) and Jonathan Avalos on January 13, 2016 around 12:30 pm in Charlotte, NC. He came out "weighing in at" 5 lbs. 6 oz. and 20" long.
We are so blessed, knowing that Hebrew origin names have been given to this little boy, chosen by the living God of Israel to do mighty exploits in the life the good Lord has planned for him.
Little Levi was born with no radius bone in either arm, having what is known as the TAR syndrome. (See below). We will be amazed at how the Lord will give much grace to Levi and his family as He demonstrates His creative wisdom and full understanding of all things.
Both Laurie and I were able to hold this newborn joy of our hearts just hours after coming forth. We look forward to seeing him grow in the faithful and believing care of his parents, brother Payton, and all of his extended family surrounding him, all in the wisdom and understanding of our Lord Jesus (Yeshua) in his time on earth.
Bless you little Levi Zachary - attached to us now and remembered by God!
Steve Martin
Proud Grandpa
Love For His People
Levi Zachary (Martin) Avalos!
(a few hours and just beginning...)
Mama Hannah and sister Christen one week before delivery
Levi with father Jonathan and big brother Payton.
Levi's Grandmother Grace Avalos holding him.
Also pictured - Grandma Laurie Martin,
Uncle Ben, brother Payton, Dad Jonathan
Little Levi - He will make it!
Jan. 16, 2016 - 3 day old photos of Levi
Mama Hannah & Grandma Laurie 01.16.16
What is TAR syndrome?
Thrombocytopenia-absent radius (TAR) syndrome is characterized by the absence of a bone called the radius in each forearm. Affected individuals also have a shortage (deficiency) of blood cells involved in clotting (platelets). This platelet deficiency (thrombocytopenia) usually appears during infancy and becomes less severe over time; in some cases the platelet levels become normal.
Thrombocytopenia prevents normal blood clotting, resulting in easy bruising and frequent nosebleeds. Potentially life-threatening episodes of severe bleeding (hemorrhages) may occur in the brain and other organs, especially during the first year of life. Hemorrhages can damage the brain and lead to intellectual disability. Affected children who survive this period and do not have damaging hemorrhages in the brain usually have a normal life expectancy and normal intellectual development.
TAR syndrome is unusual among similar malformations in that affected individuals have thumbs, while people with other conditions involving an absent radius typically do not. TAR syndrome is also associated with short stature and additional skeletal abnormalities, including underdevelopment of other bones in the arms and legs. Affected individuals may also have malformations of the heart and kidneys. TAR syndrome is associated with unusual facial features including a small lower jaw (micrognathia), a prominent forehead, and low-set ears. About half of affected individuals have allergic reactions to cow's milk that may worsen the thrombocytopenia associated with this disorder.
How common is TAR syndrome?
TAR syndrome is a rare disorder, affecting fewer than 1 in 100,000 newborns.
Source: TAR syndrome
